How did you get locked-in?
I was diagnosed with a terminal progressive disease May 24, 2017 called toxic acute progressive leukoenpholopathy. I declined rapidly over the next few months and by the fifth month I began suffering from locked-in syndrome. Two months after that I was sent on home hospice to die. I timed out of hospice and I broke out of locked in syndrome around July 4, 2018. I was communicating nonverbally and living in rehabilitation hospitals, relearning to speak, move, eat, and everything. I finally moved out of long-term care back to my new home December 1, 2020.
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