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What’s It Like To Have Fatal Familial Insomnia?

fatal familial insomnia

Fatal familial insomnia is a rare genetic degenerative brain disorder. It is characterized by an inability to sleep (insomnia) that may be initially mild, but progressively worsens, leading to significant physical and mental deterioration and death.

How does it feel to constantly be awake?

Tiresome. Like I just woke up 20 minutes ago after a shit night. I’d say the very closest thing I could compare it to is the first hour of being awake, where your body and brain are never fully turned on.

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Picture Of The Day

Picture of the Day

Ricard Siagian

There is a very rare type of insomnia when you just don’t sleep. This leads to insanity and death within 18 months

The disease has four stages:

1. The person has increasing insomnia, resulting in panic attacks, paranoia, and phobias. This stage lasts for about 4 months.

2. Hallucinationsand panic attacks become noticeable, continuing for about 5 months.

3. Complete inability to sleepis followed by rapid loss of weight. This lasts for about 3 months.

4. Dementia, during which the patient becomes unresponsive or mute over the course of 6 months, is the final stage of the disease, after which death follows.

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